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Researchers at BioGrid Australia member and/or collaborator institutions may submit new or amended applications requesting access to data connected to BioGrid using our online application system.
Authorised researchers can explore and visualise data on specified connected data utilising a web interface.
Authorised researchers can utilise this comprehensive data and statistical analysis application to analyse, explore and visualise connected datasets for approved audit and research projects.
The National Death Index (NDI) is a database, housed at the Australia Institute of Health and Welfare (AIHW), which contains records of all deaths occurring in Australia since 1980. These data are obtained from the Registrars of Births, Deaths and Marriages in each State and Territory. The Index is designed to facilitate the conduct of epidemiological studies and its use is strictly confined to medical research.
BioGrid Australia and the Australian Institute of Health and Welfare formed a partnership in 2012 to provide a much needed service for medical research efforts across Australia. This partnership provides a streamlined approach for researchers to access the AIHW National Death Index to obtain date and cause of death information for defined projects.
BioGrid uses a Unique Subject Identifier (USI) number to identify patients’ demographic and clinical records. In order to facilitate research and for researchers to link patient records across databases, BioGrid usually shares the USI number with authorised researchers.
AIHW required for this partnership that linkage to the NDI would be project specific linkage, in other words, patients in the project cohort would be given project specific identifiers (PID) that are unique to each project. This fulfils BioGrid’s requirement under the AIHW agreement that:
This has resulted in BioGrid providing PID numbers for each approved AIHW project.
Recent information from AIHW has indicated that if researchers request ONLY date of death, we may not need to utilise the project specific identifier (PID) for the project cohort. This is subject to approval by the AIHW Ethics Committee.
AIHW charges an ethics fee as well as a linkage fee for each project. BioGrid has negotiated favourable terms for its members, this includes both the AIHW ethics and linkage fees as well as BioGrid assisting with and managing your application for access and facilitating the linkage with AIHW, contact us to discuss.
Each project wishing to access NDI data must submit an application for access to the AIHW Ethics Committee. Four to five ethics committee meetings take place each year, refer to details below. Submissions are accepted approximately one month prior to the meeting dates.
As BioGrid will assist you with your application to the AIHW Ethics Committee, we will require you to submit your application to BioGrid two to three weeks before the AIHW submission date, as below. If your research project does not have ethics approval, we require you to submit your application to BioGrid sooner to allow sufficient time for your project to receive ethics approval through BioGrid. We have successfully conducted linkage projects under this arrangement and we look forward to assisting members with future projects.
19 February 2019 (11 January 2019 AIHW submission; 14 December 2018 BioGrid submission)
14 May 2019 (12 April 2019 AIHW submission; 22 March 2019 BioGrid submission)
23 July 2019 (14 June 2019 AIHW submission; 24 May 2019 BioGrid submission)
01 October 2019 (23 August 2019 AIHW submission; 02 August 2019 BioGrid submission)
10 December 2019 (01 November 2019 AIHW submission; 11 October 2019 BioGrid submission)
If you have a project that you would like to access accurate date and cause of death for a specific research project, apply for access through the BioGrid Access Request System. The NDI is listed as a data set to apply for access. BioGrid will then assist you with the application for submission to the AIHW Ethics Committee under our streamlined process with AIHW. Apply today.
+61 3 9342 2690
For technical difficulties using SAS to access data, please log a request and state the application as "BioGrid".
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